I'm very pleased to announce that the Jake's Help From Heaven Foundation is my May nonprofit of the month. Founded in 2011, this non-profit foundation is dedicated to supporting children and families with multiple medical challenges and disabilities. Their goal is to assist children and their families affected by debilitating illnesses including neurological impairments, mitochondrial and genetic disorders, and pediatric orthopedic problems by:
•Providing grants and other financial assistance to offset costs of necessary or convenient equipment, transportation to and from treatment centers, temporary lodging near the place of treatment, patient and family member counseling and such other similar costs
•Providing non-medical ancillary support services, such as peer social support groups and outreach programs to raise awareness among the lay community about leukodystrophies, and providing a clearinghouse for information relating to such disorders
•Supporting research, whether it be historical, scientific or some other medium, regarding leukodystrophies and other rare disorders
•Providing a storeroom and exchange opportunity for families requiring adaptive equipment
The foundation is named in memory of Jake Alexander Straughter who earned his angel wings on December 8, 2010. Jake was born on May 4, 2006 a healthy, vibrant baby boy. He suffered a seizure at 8 months old and this began his very complicated medical journey. While his family never received an official diagnosis for Jake's illness - at the time of his death it was thought that he had a type of leukodystrophy, a group of disorders characterized by progressive degeneration of the white matter of the brain. Through his short life, he battled epilepsy, liver disease, osteopenia, femur fractures, hip dislocation and more. He faced each hurdle with strength and courage and taught those around him how to persevere.
Twenty percent of my online sales this month will be donated to this wonderful organization.
No comments:
Post a Comment